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Effect of individual psychoeducation for primary caregivers of children with autism on internalized stigma and care burden: a randomized controlled trial

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Abstract

This study aims to determine the effects of a six-week individual psychoeducation program provided to primary caregivers of children with autism on stigma and care burden. The study was conducted with 88 primary caregivers (experimental group n ¼ 45, control group n ¼ 43) of children diagnosed with autism. The study, prepared in an experimental design with a pretest, posttest, and control group, was performed between 17 June 2021 and 17 January 2022. In the study, a six-week individual psychoeducation was given to the experimental group. Study data were collected using a personal information form, the Internalized Stigma of Parents in Mental Illness Scale (ISPMIS), and the Caregiver Burden Scale (CBS).The mean pretest ISPMIS total score of the experimental group was X ¼105.756 and the posttest total score after the psychoeducation was X¼66.489,which was a significant decrease (t ¼ 25.571; p < 0.05). The mean CBS pretest total score of the experimental group was X¼61.067 and the posttest total score was X¼31.667, which was a significant decrease (t ¼ 17.499;p < 0.05). The study revealed that the six-week individual psycho education provided to primary caregivers of children with autism decreased the participants’ internalized stigma and perceived care burden.

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caregiver burden; children with autism; primary caregiver; psychoeducation; randomized controlled experiment

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International Journal of Developmental Disabilities

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